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TCA Virtual Makeup Event Featured on Beauty Website

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“If you made a Venn diagram of teen cancer patients and drag queens, eyebrows, color correction, and eyelashes would all be in the center,” says Scarlet Envy over Zoom, before moving on to the heart of the day’s virtual meeting. But first a note about “realness,” which in Scarlet’s world is a ball term that refers to embodying a different gender or profession so perfectly an audience would never know the difference. In Scarlet’s makeup classes with Teen Cancer America realness is part of the curriculum, whether that means camouflaging illness or connecting through play.

When TCA originally reached out to Scarlet, the plan was to do a series of in-person makeup classes. The nonprofit partners with hospitals throughout the US to develop specialized protocol and programming for young adults because, as TCA’s Executive Director Simon Davies tells me, “Too many young people with cancer don’t fit into the traditional molds of children or adult hospitals—they need their own place and the opportunity to connect.” A makeup lesson with a Drag Race alum would be the perfect balance of helpful expertise and fun silliness. “I don’t have a degree in makeup, but I know what works for my face,” adds Scarlet. “I think [the class] is really about getting lost in self love.”

“I think [the class] is really about getting lost in self love.” -Scarlet Envy

When COVID hit, TCA pivoted to virtual rather than canceling the class altogether. Scarlet admits there was a bit of a learning curve—it’s tricky to guide a class of 15 without being able to offer hands-on help. But she also recognizes that meeting up online is a necessary form of connection for teens who are particularly vulnerable to the coronavirus. A representative from TCA shares that a digital class was able to also be a more inclusive one—a few participants who wouldn’t have been able to attend in-person (even sans-pandemic) were able to follow along from their hospital beds.

After registering for the free class, each participant receives a swag bag of donated beauty products Scarlet teaches them to use. Wigs are also supplied to anyone who has lost their hair. Not-so-coincidentally, Scarlet’s a pro at putting on a wig. (She’s much more seasoned at it than any makeup artist you’d find at a beauty counter or even a photoshoot, because it’s an integral part of her art.) Which brings us back to that beauty Venn diagram Scarlet mentioned—there are a lot of reasons why a drag queen is the perfect shepherd to guide this group of teens to beauty nirvana. Below, find the tips she thinks everyone should know.

Brows

“This class is for survivors and those who are currently going through treatment, so most people will have a little bit of eyebrow,” says Scarlet, who advises that a little bit of texture or shape can be helpful to start. But it’s also OK if they don’t really have eyebrows—a lot of the time, drag queens shave their eyebrows off to work with a bare canvas. Scarlet personally likes to block out half of her brows with Elmer’s glue, powder, and foundation when she gets into drag. All of that is to say, drag queens know how to build up a brow from nothing. To figure out the best, most natural brow shape for each person’s face, Scarlet asks participants to grab a makeup brush and place it straight up and down right next to their nostril. “With a little bit of Tarte brow pomade on a second brush, make a dot on your brow bone where the first brush sits, then angle it to the middle of your iris and make another dot, then angle it one more time to the edge of your eye and make a third dot,” she explains. It’s important that the edge of the brush you’re using as a guide touches your nostril throughout.

Next, fill ‘em in. “I’m a big proponent of using your hand to warm up your product and make sure your brush isn’t too oversaturated—if your wrist doesn’t look like a Picasso at the end of your beauty regimen, you’re doing something wrong.” Using the pomade and a thin, angled brush, Scarlet advises folks to connect the three dots they just drew and then bulk up that line to their heart’s content. “I love a bushy ‘80s supermodel brow, but I have just as much love for that early 2000s pencil-thin Pamela Anderson moment,” she explains. To finish off the look, she instructs her class to set the pomade with a powder or eyeshadow in the same tone (“We never want our eyebrows moving around”), and add a subtle highlight to the brow bone. “The difference between the matteness and the dewiness helps separate a drawn-on brow from the rest of the skin.”

Color Correction

As Scarlet explains, a common side effect of chemotherapy is a blueing or graying of the skin. “Drag queens have a beard that we need to shave and color correct, because it leaves a blue-gray cast.” To color correct, Scarlett recommends using the color opposite the one you want to cancel out on the color wheel—for blue tones that’s a peachy orange, for deep green shades it’s more of a red. The warmth of these color correcting shades also helps counteract the grayness that’s visible when you’re not feeling well. “After applying a creamy color corrector, set that with a powder, and then you can go forward with your foundation.” Scarlet emphasizes that if you have dark circles or discoloration anywhere, you can use the exact same technique.

Lashes

Lashes are… tricky. Even for a seasoned drag queen. But as Scarlet points out, it’s even tricker if you don’t have a base layer of natural lashes to anchor the falsies—it takes some trial and error. Scarlet’s TCA class actually uses lashes from Loveseen, which were made with sparse natural lashes in mind. As founder Jenna Lyons shared in her Top Shelf, a genetic disorder that caused her to lose her natural lashes inspired her line of lash strips that “can work for me, and can also work if you do have natural eyelashes.” Scarlet uses Duo glue to adhere them, and has a few pointers on application technique. “The transparent is better than black, because you won’t be able to see it when it dries, and I also suggest getting the brush-on version,” she says. “If you already have the one in a tube, squeeze a little on your hand and kind of dab the lash through it to make sure you don’t use too much.” After applying the glue, Scarlet recommends letting it get tacky before sticking it onto your eyelid. Finally, hold the lashes in the corners and center of the lid as they dry. “Lashes have a bad habit of lifting,” she adds, “it’s something you just have to get used to.”

Brands that donated product to TCA’s makeup class include TarteBenefitLoveseenCol-LabBelieve BeautyZeal CaresMACColourpopGlossierArda WigsPixi, and BH.

Scarlet Envy Dazzles TCA Makeup Tutorial

RuPaul’s Drag Race star Scarlet Envy joined Teen Cancer America for another glamorous makeup tutorial for 15 teens and young adults who have or had cancer.

I Wouldn’t Miss it for Anything

My name is Micaela, and on December of 2016, I received my first cancer diagnosis of sarcoma botryoides, a rare type of cancer.

Healing Through Song

This past February, I was diagnosed with a rare form of Leukemia—a complete shock to my system. Cancer doesn’t run in my family, and I always thought Leukemia was something that young children got. Not 24-year-olds. I thought my life was over.

Luckily, it wasn’t just yet. As I learned, Leukemia is very treatable. Fortunately, I responded very well to those treatments. After two months in the hospital, (about half of the time without visitors because of COVID-19 precautions), I was in remission. However, I was laughably far from being done with the cancer experience. After a few more cycles of chemo, I was highly advised to get a bone marrow transplant to prevent the disease from coming back. I don’t know how familiar you might be with bone marrow transplants, but I knew absolutely nothing about them. In the months approaching my transplant, I was educated on how life changing of an event that it is, and how difficult and lengthy of a recovery process it has. Great. 2020 was going to be a long year.

I had one of my first conversations with my social worker. She told me about the AYA (Adolescent and Young Adult) cancer community and about all of the resources that were available for me.

Earlier on in my long year, during my initial hospital stay, I had one of my first conversations with my social worker. She told me about the AYA (Adolescent and Young Adult) cancer community and about all of the resources that were available for me. She asked me questions about myself, and I happened to mention that I’m interested in music. That sentence turned out to be one of the best things I’ve ever uttered. She connected me with Teen Cancer America, specifically their Play It Back music program. A few days later, I met music producer Kenli over the phone so he could explain Play It Back to me. I almost couldn’t believe what I was hearing. He writes and produces original songs with AYA cancer patients like me, just because he has the heart for it? Well, it just so happens that writing and producing my own music has been my greatest dream for years. The only problem was, I had no idea where to start. And here he was, a professional music producer telling me that he can help make my dream come true at absolutely no cost to me.

As I went through chemo, radiation, and finally transplant, I was delighted to be involved with Kenli, co-founder Hilary, and the rest of the Play It Back artists. I could have a bone marrow biopsy in the morning, but look forward to a fun music-related weekly Zoom call (“Music Mondays”) with everyone in the evening. I always joke morbidly with my friends: “I should have gotten cancer a long time ago because this is awesome!” I’m also extremely impressed with how the program has carried on throughout the COVID-19 pandemic. I’m sure that the entire program could have been put on pause because we can’t go to Kenli’s studio in person at the moment, but it kept going. Recording sessions were switched to video calls and the aforementioned “Music Mondays” were instated. If the amount of effort wasn’t put in to work with all of us remotely, my entire 2020 would have been much different and much lonelier. I’m grateful to say that this year I have learned a ton about making music, gained new friends (that I hope to meet in person soon!), written several original songs, and am very close to having my first ever fully produced song. Who knew this could all be possible for someone who spent most of 2020 feeling sick?

If the amount of effort wasn’t put in to work with all of us remotely, my entire 2020 would have been much different and much lonelier.

The song that I’m working on right now is called “Above.” It’s about the miracles that God has done in my life throughout this scary cancer experience. He’s brought in incredible people and opportunities, kept me from mental breakdown, and made me a stronger person. One of the most important parts of the song for me is when I sing the line: “It’s not the end for me. It’s a beginning.” I wrote that line to remind myself that I have so much more left to do. My life isn’t over like I thought it was that day in February when I was diagnosed. While I still have my moments of mental weakness as I’m still recovering from my bone marrow transplant, I know in my heart that this year is a miracle—a story that I will tell many years from now. I’m thankful to Teen Cancer America for being part of that miracle.

What is Normal?

My name is Tori and I am 24 years old. I was diagnosed with acute myeloid leukemia at 19, right before I was about to finish my second quarter of my sophomore year in college. I remember I had just gotten back a paper from my philosophy course that I got 100% on, and I was 2 or 3 weeks away from finals. My first year of college was a rough one and my grades were not at all worthy of putting on the fridge, but in my second year, something had changed. I found motivation and actually had a desire to do well, and to meet that desire. Now this wasn’t the only thing my diagnosis messed with but the fact that I had to take an incomplete for that quarter and didn’t get any credit for the courses I had worked so hard for just felt like this looming symbolism over my life. At the time of my diagnosis, I was working my first official job, I was in my first official relationship, and I was able to be myself with my friends. I think I was happy.

“How long will it take me to feel normal again?”

I sort of remember my first week at the children’s hospital where I received all my treatments. I sat up in my hospital bed, hair hadn’t even started to fall out yet from the chemo, and I asked my oncologist, “How long will it take me to feel normal again?” I can never tell if the question quite caught my doctor off-guard, but looking back now I know we were thinking about totally different things. He was thinking about how to kill what was inside of me before it killed me. I was thinking about how if I live, what is that going to be like after? I had no idea, and frankly neither did anyone else. But he gave me an answer anyway. “Some patients begin to feel a sense of normalcy around 3 years, maybe more.” He said this before it was eventually decided I needed to have a bone marrow transplant because the chemotherapy was not doing enough work on its own.

While there was a lot that went on during my 7 months of inpatient treatment, I do want to focus on the transition back to *gasp* real life afterwards. I will note that during my treatment, all I could think about was the life I was missing out on. And on my week-long stays at home (which I was actually terrified to do since there were no nurses and doctors and IV pumps in case something bad happened), all I could think about was how the germs around me which I couldn’t see were a danger to my health. I couldn’t leave the house without wearing a mask (which now I am heh-heh-ing at everyone complaining about having to do that today). I couldn’t stand for too long without feeling totally winded. I couldn’t stop thinking about how I would not be able to provide a family for my partner. I couldn’t even think about going places in the future without absolutely losing my sh*t because I didn’t know when that was going to be. I was 19, going on 20, and so were all my friends, so was my boyfriend at the time. We had no idea how to handle something like this.

I lost a lot in the first year after I was officially discharged for my cancer treatment. I lost my partner, I lost some friends, I lost my mind several times. I was on medications that had emotional side effects and if you mix that with trauma you get a whole lot of thoughts and behaviors which make you feel (and look) crazy. But what’s important to me now is that when I look back at myself, I see this severely injured being who maybe just didn’t have the right support around them at the time. I have to be softer with them, care for them the way they didn’t allow anyone to care for them. And I have to remember with all my heart that nothing was my fault, nor my parents, nor my friends. Sh*tty things happen, and they happened to us.

The truth is I never stop thinking about everything that’s happened over the past five years..

When initially writing this piece, I started over 5 or more times. There is so much I could write in response to any prompt or question. I feel like my whole diagnosis, treatment, and life afterwards is important to any and all aspect of my experience with cancer. So yeah, even when you’re done reading what someone’s written or listening to what they’ve said, there is always so much more. The truth is I never stop thinking about everything that’s happened over the past almost 5 years, which as you can imagine messes with someone’s mental health and how they interact with others. There are reminders all around me that there was a before, and I am now hyper-aware of the after I am living in. And while I’ve gotten better at getting a hold on those thoughts as opposed to letting them eat me alive for the remainder of my days, it doesn’t feel as though this transition back to “real life” ever ended. It’s still happening and I’m still learning to love the me that I am today. We are not and will never be who we were before cancer, and that’s okay. It’s something I still have to actively accept on a day-to-day basis, and even though it doesn’t always work, I want people to know that there is no blueprint and while that’s pretty frickin’ scary, it’s okay. Unfortunately, this is rarely taught to us and is hopefully among the things we learn. Sometimes I wish I could go back in time and give myself a little nudge like, “Hey… ya know what, you are going to miss out on things but that’s just your life right now and eventually it won’t be.” Even though I can’t actually do that, at least it’s what I’m thinking now. It was all painful, it still is, and I am here, almost 5 years later. I still deal with mental health issues, medical issues, and the fact that a majority of the people in my life will never fully understand what I’ve gone through. Sometimes I feel like my fight didn’t begin until I found out I was going to live, but no one can fight 24/7. If I had to give any sort of advice to someone in that beginning transition stage, I would definitely say rest. You deserve it.

You Are Never Ready

You are never ready to hear your child has cancer at any age. We just celebrated my son Matt’s 3-year anniversary of ringing the bell (finishing chemo), I can say it probably is the first time in over 6 years that I have been able to sit back and breath. 

Our cancer journey began like any other health issues with a 19-year-old. Matt was not feeling well, but nothing seemed urgent. Matt was weeks away from going back to Denison University for his sophomore year. My husband and I were on our way back from a vacation when our older son, Tim, said he would be picking us up from the airport. Matt was not joining him as he had not been feeling well over the last 2 days. 

When we got home, Matt greeted us. I was surprised at how white he was. As the expression goes; he was as white as a sheet. Looking back, I should have been more concerned. I just told him to go to bed and get a good night sleep.  

Early the next morning I saw Matt in the TV room. Matt was not an early riser, so I knew something was off. He said he was feeling awful. A zit under his arm was really bothering him. As it was a Saturday morning, I knew the best option was to take him to urgent care and maybe get him an antibiotic.  

The urgent care was crowded. In hindsight, it might not have been the best place to take someone I would find out later was so sick. The staff at the urgent care said that he might have a staph infection and suggested I go to the local area hospital.  

Here is when things went from getting an antibiotic and going home to, wow… something much more serious is up with Matt’s health.

Luckily, the local hospital was minutes away. Here is when things went from getting an antibiotic and going home to, wow, something much more serious is up with Matt’s health. Matt was taken into the exam room. They tried to draw blood. The problem was, they could not find a good blood vessel… Concern number one.  

The staff was worried enough to call our general practitioner. I did not know they had called our doctor until he showed up to talk to me and my husband. He did not mince words. He came out immediately and said there was a very good chance Matt might have leukemia. I of course focused on the word “might” not wanting to admit Matt had cancer. I was in denial.  

After that, an ambulance was scheduled to drive Matt to Seidman Cancer center in Cleveland. This should have been concern, number 2-the staff was not comfortable with me driving Matt to the hospital. What kept me calm during the ride to Seidman was that it had not sunken in that Matt was in for the fight of his life. Matt was immediately admitted. He was to spend the next 33 days in the hospital and have continuous chemo treatments for the next 40 months. 

So began our new normal, night one. Matt and his father spent the night in the hospital. In all they spent 33 nights in the hospital together. I drove home from the hospital that night in tears and shocked, what had just happened! 

Our lives as we knew it had totally changed. Matt, God bless him, will always say “for the better”. Treatments initially were very difficult. Naturally, as the staff had to start killing the exploding infection in Matt. It was hard to see him in such pain, I felt powerless.  

We are so thankful that Rainbow Babies and Children’s hospital had the Angie Fowler Adolescent and Young Adult Cancer Institute and to Teen Cancer America.

The wonderful thing was how positive Matt was during treatment. His positive attitude made the cheerleading much easier for me. 33 straight days in the hospital. We are so thankful that Rainbow Babies and Children’s hospital had the Angie Fowler Adolescent and Young Adult Cancer Institute and to Teen Cancer America. Matt was going to be treated as a teenager not as an adult nor a child. There is a difference.  

After getting Matt’s health stabilized, the initial protocol was a new treatment every few weeks. As a planner, I always wanted to know what treatment was next. I soon found out that was not how the staff communicated. We were only told about each treatment as they happened. Before Matt’s diagnosis, I would have never thought this was the best way to approach his treatment. Now, I understand it was to keep us from looking too far ahead. Stay in the present.  

Matt missed his sophomore year at Denison. Attending college that first year of treatment was not really an option.  He did go back for the fall semester the next year and then attempted the spring semester. Juggling the treatments while attending college ended up being too much.  

It was tough to see him so disappointed. He was so frustrated. We did what we could do to distract him the weeks he didn’t have chemo. We went on trips. For the first 2 years after his diagnosis, we were extremely careful about where we took Matt and who visited.

Knowing where the nearest hospital was  on every trip was very important. On one occasion we had to rush him to the hospital after we landed at Cleveland’s Hopkins airport. Another time he tried to be a host to his cousin for New Years. This was really tough for him as the treatment just finished was an incredible drip of chemo for 24 hours and then he was expected consumed water through drinking and a drip to flush the chemo out of his body. It was exhausting.

I was always so impressed how tough Matt was throughout his treatment. It was incredible to think Matt, a 19-year-old, was learning how precious life is at such an early age. We had no choice but to live our lives and live without fear. I constantly prayed the tough times would end quickly.

Matt logically got tired of the emergency room visits. In the spring after his diagnosis, he came home after a tough round of treatment. The nurse told me that if he vomited too much he needed to come in and be evaluated. No coaxing could get him to go with me to the hospital until his father came home from a trip and made him go. Matt used one of his nine lives over that weekend.  He was really sick and we had little time to waste once he got to the hospital.  

Thinking about it now, I was more frightened that weekend then almost any other time during the treatment. I knew Matt should have gone to the hospital, but he refused to go and there was nothing I could do. We were very fortunate nothing more serious happened. 

We had many little scares on long the way. Matt did end up going back to Denison. The school was incredibly accommodating giving Matt his own room and bathroom while the on-campus infirmary was able to help him when needed. The best news is Matt is a Denison Alumni!

It has been over 6 years since Matt was diagnosed. Matt is doing really well. For me it is a relief to hear he is cancer free, but thoughts always stay in the back of my mind. How is he really doing?

Our lives for the first 40 months were focused on making sure everything was being done to help Matt succeed physically and mentally. After he rang the bell, we have found our new sense of normal.  We adjusted to post cancer life with Matt.

Many families are not so lucky. After the diagnosis, the family’s main goal is to support the cancer patient through the treatment. Sadly, for some families this is very difficult.

Matt and I have jumped into helping others through volunteering and advocacy. The diagnosis has given us purpose. Matt said this early on in his treatment and he is right! We know we are very fortunate. Matt survived and we also had the means to financially adjust our lives to keep him on track to kick the cancer.

Many families are not so lucky. After the diagnosis, the family’s main goal is to support the cancer patient through the treatment. Sadly, for some families this is very difficult. The sacrifices and adjustments can really hurt financially and emotionally. A parent or spouse ideally should be ready to take the patient to treatments. This can be rough on employment. Paying the bills insurance does not cover, getting to treatment, paying for parking or all the little things you might not think of; that can also take its toll on families too.  This is where Matt and I have put our energy, found our purpose.  We are determined to help those families in tough situations, so they can focus on helping their child or family member get better.

Organizations like Teen Cancer America and Leukemia and Lymphoma society are helping everyone through their journey and inroads to curing cancer. I would be remiss if I also did not thank the wonderful people at Rainbow and Babies Children’s Hospital. Because of their tireless support and care, Matt is here with us today, better than ever! 

Patience Navigating Patients

Hello! I am Shannon Voelkel, one of the new additions to the Duke Cancer Institute’s Teen and Young Adult Oncology Program. I started my position as patient navigator back in January. I hope I am able to illustrate my passion for not only this role, but the patient population that I have the privilege to work with every day.


I like to introduce myself to patients as a glorified tour guide who follows them through their entire cancer journey making sure that the experience is tailored to their personal needs, whether it is emotional, social, or medical I am here to help. I say journey because a cancer diagnosis is continually life-altering no matter how much time passes. I am along for the ride—checking-in, educating, and providing a safe space to address unique needs that typically arise not only with teens and young adults, but their loved ones, too.


Since 2016, I have been involved with the young adult patient population at Duke with a variety of chronic illnesses. No matter the diagnosis or stage in their healthcare journey, there is a bit of magic that happens when they are brought into a community that simply “gets it.” Having the ability to normalize even one side effect or educate a patient about a future change that may come about because their diagnosis is indescribable.

What I have enjoyed from the role so far?


I wish I could nail down one part that I have enjoyed the most, but in all honesty, I have enjoyed every single aspect. Continually working with patients along their journey and directly experiencing the impact is exciting and motivating. Receiving funding from Teen Cancer America has allowed the Teen and Young Adult Oncology Program at Duke to thrive even amidst a global pandemic! I have continually been able to safely support and connect patients to services even while in a remote position. Our virtual meetups have been a highlight for me. Opening up a space for young adults to connect during a time of isolation has been inspiring. Experiencing a group of strangers come together and watching them develop an immediate bond that fosters a sense of normalcy confirms I am exactly where I need to be.

What’s Next?

This is the most exciting part! As our program continues to grow, I get to see the ripple effect. We are expanding the TYAO community, educating healthcare providers, learning, re-evaluating, and ultimately continuing to change the standard of care for the teen and young adult oncology population at Duke—working toward our goal to bridge the gap.

Being Healthy is a Gift

by Samantha Stacey

Being healthy is a gift. If you have never been seriously ill, you may not fully understand the sentiment of that statement. Sure, being thankful for our health is a generic statement we all say, but have you really considered the weight behind those words?? If you are healthy that means you can get up in the morning, get dressed, and go where you please without help. You can stand up and make food without depending on others. You can eat food! You can take a deep breath and not have to worry about it hurting or not being able to. You can spend your days in your house, not stuck in the hospital. You can walk and run and jump without pain. You don’t have to worry about catching other illnesses more easily. You don’t have to worry about going places or your blood counts. If you have never had those things taken from you, it may be hard to truly be thankful for them. I am telling you from my own experience, every breath and step you take is something to be grateful for. If someone had told me there was a way to prevent what I went through, I would have done it in a heartbeat. No questions asked. Losing your health and dealing with the trauma of it is not worth it, I promise. I know what it is like to feel so miserable you wish you could just knock yourself out for days. I know what it is like to go days without food and to have to depend on others for everything. I understand the fear and anxiety of not knowing what the next day will bring. I have done this whole quarantine thing before under much, much worse circumstances (granted everyone’s circumstances look different now). I have had my world changed overnight. I lost my normal and had so much taken from me. I completely understand longing for normalcy. These last few months have been incredibly hard on everyone for so many reasons. No denying that. However, if your health is not something you are especially worried about during this time, you are incredibly blessed. If you are healthy enough to be angry at what is being asked of you, and to get to pick and choose what you believe, you are incredibly blessed. There are so many people who want nothing more than to be healthy (I was one of them once). Just because it isn’t you today, doesn’t mean it won’t be you tomorrow. Your health can be taken from you with no warning. Don’t wait for that to happen to recognize how big of a gift being healthy is. I promise you; you don’t want to lose it and that you would do anything to make sure you don’t

TCA and Other Charities Partner With EA Sports FIFA 21 to Host Gaming Tournament

Stars of MLS, premier league to compete in global livestream

Charity fundraiser showcasing EA Sports’ FIFA 21

“US v UK, Together Against Cancer and Covid” to Benefit

Teen Cancer America, Teenage Cancer Trust, GameChanger Charity

LOS ANGELES/NEW YORK/LONDON (Oct. 23, 2020) – The global goodwill of the international gaming community will shine Oct. 25-30 as Teen Cancer America (TCA), Teenage Cancer Trust and GameChanger Charity collaborates with EA Sports, PlayStation and Twitch to host a worldwide online fundraiser showcasing the new FIFA 21 video game. Viewers of the livestream event will be able to register for prize packages by making donations benefitting children, teens and young adults facing cancer.

www.teencanceramerica.org

About Teenage Cancer Trust

Every day, seven young people in the UK aged 13 to 24 hear the words “you have cancer.”  Teenage Cancer Trust puts young people in the best possible place, physically, mentally and emotionally, for their cancer treatment and beyond. We do it We’re the only UK charity dedicated to providing this specialized support through our expert nurses, support teams and hospital units. Visit www.teenagecancertrust.org/donate.

About GameChanger Charity

For 13 years, GameChanger Charity has worked with partners in the tech and gaming community to ease the pain and suffering of hospitalized, sick and isolated children through the power of play. GameChanger makes every day a little better for thousands of young patients and caregivers around the world through innovations in gaming and media technology to reduce loneliness and boredom, helping them feel connected and more hopeful. Visit www.gamechangercharity.org

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For media inquiries, contact:

Charles Upchurch, French|West|Vaughan

919-395-1588cupchurch@fwv-us.com

Two Institutions Joining Forces to Improve Care for AYA Oncology Patients

The James Comprehensive Cancer Center and Nationwide Children’s Hospital (NCH) have a history of working together and both strive to provide the best care possible for all AYAs, 15-39 years old. It became clear to our team leaders that staffing and programming devoted to this group was crucial to continue to move in a positive direction. Our institutions’ new formal collaboration creates a necessary and unique dual institution AYA program. 2020 has been different for all of us in many ways yet some of those differences, like social distancing and wearing PPE, are wildly familiar to adolescents and young adults fighting cancer. While large gatherings and schools may have ceased in-person, our hospitals remain open to provide medically necessary care to AYAs.

In June of 2019, with the help of TCA, The James hired their first AYA program navigator, Samantha Hulett, MSW, LISW-S. Sam worked diligently to create an AYA program referral, complete comprehensive psychosocial needs assessments and connect patients with the necessary resources to support them during and following treatment. The program referral started as a pilot with hematology, sarcoma, and breast patients and now is expanding to the whole institution. When COVID hit Ohio, it brought a unique opportunity in telehealth. Sam can now see patients and families at their convenience, by video, outside of their medical appointments. AYAs have taken advantage of care at home. Patients appear to be more open and forthcoming, secure that they have privacy and the time needed to share. This allows for more thorough assessments and referrals to the most appropriate care providers.

In April of 2020, Nationwide Children’s Hospital hired their AYA program coordinator Sarah See, MS, LPC, CCLS. She has been with Children’s for the past 10 years working as a child life specialist and a clinical lead. Her transition into this role has looked very different than Sam’s experience. Given the precautions to keep patients safe, Sarah has done much more in the background for program development. She has had the opportunity to benchmark with top AYA programs across the United States, update AYA resources, provide suggestion for how to manage care, and begin to streamline data collection. She also hosted a focus group with The James and NCH patients to assess current programming and identify opportunities for growth, including the creation of an AYA patient advisory council.

Even though these roles may look different now given our current health care circumstances, Sam and Sarah have been great mentors and supportive colleagues throughout this experience. They have a vast amount of knowledge about patient and family centered care and are strong advocates for the AYA population. They can rely on each other’s expertise for patient case discussions and best practices. Next month, they will kick-off their first combined virtual discussion group on dating during and after diagnosis. Just as Sam and Sarah work together, The James Comprehensive Cancer Center and Nationwide Children’s Hospital seamlessly blend to provide the full complement of services to adolescents and young adults with cancer.